OpenNotes is an international movement dedicated to making health care more open and transparent by encouraging doctors, nurses, therapists, and other health care professionals to share visit notes with patients, facilitating patients' legal right to access to their own medical record. Patients who have access to their full medical record, including their notes, report understanding their conditions better, feeling more in control of healthcare decisions, and being able to identify errors and inaccuracies in the record.
Video OpenNotes
Background
Co-founded by Tom Delbanco and Jan Walker of Harvard Medical School and Beth Israel Deaconess Medical Center OpenNotes began as a demonstration project involving 105 primary care doctors at Beth Israel Deaconess Medical Center in Boston, Geisinger Health in rural Pennsylvania, and Harborview Medical Center, a safety net hospital in Seattle. 20,000 patients were invited to read their notes on each health system's online patient portal. The overwelmingly positive results of the study funded by the Robert Wood Johnson Foundation were published in 2012 in the Annals of Internal Medicine. Researchers reported that at the year's end, 99% of patients surveyed wanted to continue accessing their notes, 85% said open notes helped them feel more in control of their care, 70% of patients taking medications reported better adherence, and 85% of patients said the availability of open notes would affect their future choice of doctor. Doctors reported little change to workflow, and none chose to discontinue participation.
In 2015 the Gordon and Betty Moore Foundation, the Peterson Center on Healthcare, and the Cambia Health Foundation joined the Robert Wood Johnson Foundation and announced new funding to support innovation, research, and the goal of spreading OpenNotes nationwide.
Maps OpenNotes
History
In 1991 the Institute of Medicine (IOM) released a report, "The Computer-Based Patient Record: An Essential Technology for Health Care." The report made a strong case for electronic health records, saying they are essential to improving health care quality and safety.
The Health Insurance Portability and Accountability Act was enacted by Congress and signed into law by President Clinton in 1996. An important component of this complicated act was the establishment of national standards for Electronic Health Care mandating that patients nationwide have the right to inspect, review, and receive copies of their medical records. This eliminated a critical barrier to access and eased the path toward open notes.
By the late 1990's health systems and technology companies had begun to develop and adopt secure online websites called patient portals, which allow patients to access some of the personal health information in their medical record. Using the portals, patients can read information such as medication lists and test results, and many can send secure email to their health care team.
- Adventist Health
- Agnesian HealthCare
- Allina Health
- Avera
- Banner Health
- Baylor College of Medicine
- Beth Israel Deaconess Medical Center
- Billings Clinic
- Boston Children's Hospital
- Cambridge Health Alliance (CHA)
- Carolinas HealthCare System
- CaroMont Health
- CentraCare Health
- Cleveland Clinic
- Columbia St. Marys
- CoxHealth
- Dartmouth-Hitchcock
- Duke Health
- Eskenazi Health
- Essentia Health
- Fort HealthCare
- Geisinger Health System
- Great River Health System
- Kaiser Permanente (Colorado)
- Kaiser Permanente (Georgia)
- Kaiser Permanente Northwest
- Kaiser Permanente (Washington)
- Kansas Health information Network
- Lancaster General Hospital
- Legacy Health
- Licking Memorial Hospital
- Mankato Clinic
- Mayo Clinic
- MD Anderson Cancer Center
- Mercy Health
- Mercy Medical Center
- Michigan Medicine (University of Michigan)
- Mosaic Life Care
- Mount Sinai Health System
- MU Health Care (University of Missouri)
- Murfreesboro Medical Center
- Nationwide Children's Hospital
- Nemours Children's Health System
- Ochsner Health System
- Omaha Children's Hospital & Medical Center
- Ontario Shores Center for Mental Health Sciences
- Oregon Health & Science University
- PeaceHealth
- PennState Health
- Providence Health & Services
- Rush University Medical Center
- Saint Alphonsus
- Samaritan Health Services
- Sanford Health
- Spectrum Health
- Springfield Clinic
- Stanford Health Care
- Sutter Health / Sutter Medical Foundation
- The Portland Clinic
- The Vancouver Clinic
- U.S. Department of Veterans Affairs (VA)
- UCHealth
- UK Healthcare
- UHIN (Health Information Exchange in Utah)
- University Health Network (UHN)
- University of Florida Health
- University of Iowa Health Care
- University of Mississippi Medical Center (UMMC)
- University of New Mexico (UNM) Health System
- University of Utah Health Care
- University of Vermont Medical Center
- UW Medicine
- VCU Health
- Virginia Mason
- Wake Forest Baptist Health
- WellSpan Health
- WellStar
- Yale Health
Research
What patients value about reading visit notes: a qualitative inquiry of patient experiences with their health information Gerard, Macda, et al., JMIR, July 2017
Patients Typing Their Own Visit Agendas Into an Electronic Medical Record: Pilot in a Safety-Net Clinic Anderson, McHale, et al., Annals of Family Medicine, March 2017, ePub
Your Patient Is Now Reading Your Note: Opportunities, Problems, and Prospects Klein, Jared W. et al., The American Journal of Medicine, October 2016, Volume 129, Issue 10, 101 -1021
When doctors share visit notes with patients: a study of patient and doctor perceptions of documentation errors, safety opportunities and the patient-doctor relationship Bell, Sigall, K. et al., BMJ Qual Saf doi:10.1136/bmjqs-2015-004697
Sharing Physician Notes Through an Electronic Portal is Associated With Improved Medication Adherence: Quasi-Experimental Study Wright, Eric et al., JMIR 2015;17(10):e226
Let's Show Patients Their Mental Health Records Kahn, Michael W. et al., JAMA. April 1, 2014 311(13):1291-1292
Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead Delbanco, Tom et al., Annals of Internal Medicine. October 2, 2012 157(7):461-470
References
External links
- Official website
Source of the article : Wikipedia
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